We started off the new year with a new van after our crash. It worked out well that friends were selling their van so win-win situation. Now we have a red van (Go Huskers!) which is basically like ours. We took the van on its maiden journey (with us) to see my parents and grandma over New Years. We will never again be staying at this hotel on NYE. People (my husband suspects the employees) ran through the halls at midnight, yelling Happy New Year and throwing confetti everywhere. Yes, it was NYE. I get it, but aren't we at a hotel where the point is so people can sleep?? Princess had an especially hard time sleeping that night (that weekend) so it was rough. She also had 5 blow outs over the weekend. Thankfully, she got clothes for Christmas.
|boys got cozy robes|
|Princess got a crinkly book she loves & time with her grandpa, which she loves|
|I love getting to see my grandma when we go home!!|
At this visit, Megan and we decided to set Moose up with a 96-hour EEG. It's an in-patient thing so I plan on going with him for the first few days and Big A the last few days. Hopefully, they could even get enough information to send us home early. They will take him off of one of his medications, both if necessary, to try to get him to have seizures so they can read the data. This will tell us if his seizures are coming from one or multiple areas of his brain. We have this scheduled for the end of February, so keep us in your prayers.
Squirt has a tendency to get jealous over Moose's missing school for doctor's appointments. He forgets how he gets out of school to see the ENT and allergist, too. He commented that Moose "gets all the fun." So I've arranged for him to have a sleepover with a friend one of the nights we will be gone. I'm very sensitive to this middle child and I wish I could sweep over it all to make life easy but I know that this will be for his good, too. Special needs siblings are often very compassionate people and I pray this very thing for him.
He is also emotionally difficult lately. First grade boys are drama. He was getting upset when he was building Legos and said "I'm just stressed!" Well, he takes after his mama. Poor kid. I am trying so hard to mend bad habits I've passed on to both boys when dealing with stress and frustrating situations. I'm not the best at it. Lord, help me.
|she found my dress more desirable than toys this day in Sunday School|
|rarely without a smile, this one|
|WE MADE IT 6 MONTHS! Huge milestone, I think!|
|wrapped around her finger, this guy|
|if you're eating, she wants to be eating. She loves this mesh thing.|
|tutus are so fun!|
|she's everywhere! Although she has not made her way out of the living room yet|
|had a surprise visit from Big A's Mom and Great-Aunt Arlee (pictured here). She hadn't yet met Princess.|
My little sister is getting married in August. Very good time to be losing baby weight, for sure. I went to Omaha and took my little Squirt with me to try on a bridesmaid dress. It was a fun day with my family but I was thankful to get home before snow hit.
|not the right color but I think it fit nicely.|
|found "fun straws" at a mall store in Omaha. Squirt has never drank so much water!|
Moose had 4 small seizures in January. It's tough to watch him be so unresponsive and then his medicine makes him exhausted. He has been going to bed quite early, which results in an early wake up (anywhere from 2am to 6am) and he has a difficult time going back to sleep (another trait from me). It's hard to have quality time with him, for sure.
|Cub Scout cake bake auction|
|such easy cakes this year! but I bet they were yummy|
|Forever thankful for a Daddy who comes home and wants to spend time with the kids and me|
We have been severely blessed by our church family during this time. Financially people are crazy generous and we appreciate the gifts, but even more so we appreciate the prayers. We are thankful to be just fine financially (thanks to the stewardship of Big A) and emotionally mostly we are ok. I have days where it's rough to be a mom but any mom can agree to that, special needs or not. We have so much to be thankful for. These days I'm most thankful for the Lord's healing. We haven't seen it on earth yet for Moose but we continue to have that hope of an eternity with our Lord with no more crying, no more pain, and no more epilepsy. I have found a new energy to really be intentional with speaking and acting in hopes of sharing our love of Christ with our children. I know, the decision to follow Christ is theirs but if they do not hear the gospel, how can they follow? Christ has given me this blessed responsibility that I take very seriously, to share His love and to be His hands and feet within my own home. While this may seem small to some, it's huge in the Kingdom because I'm doing my best to be obedient to Christ's calling on my life.